Les Feux Follets www.phenylcetonurie.org

Qui sommes-nous ? En savoir plus Les Maladies représentées La phénylcétonurie est une déficience enzymatique rare qui touche en moyenne 1 nouveau-né sur 16.500 en France et 40 personnes

OVERVIEW

The website phenylcetonurie.org presently has a traffic ranking of zero (the smaller the better). We have analyzed nineteen pages inside the web page phenylcetonurie.org and found seventeen websites interfacing with phenylcetonurie.org. We were able to discover three contacts and locations for phenylcetonurie.org to help you correspond with them. We were able to discover one public networking accounts owned by phenylcetonurie.org. The website phenylcetonurie.org has been online for one thousand one hundred and one weeks, eleven days, nine hours, and forty minutes.
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May 2004

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PHENYLCETONURIE.ORG HISTORY

The website phenylcetonurie.org was first submitted to the registrar on May 25, 2004. It is now one thousand one hundred and one weeks, eleven days, nine hours, and forty minutes old.
REGISTERED
May
2004

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LINKS TO DOMAIN

afdphe.org Une vocation, le dépistage néonatal

Le prélèvement permet le dépistage. Il est effectué auprès de tous les nouveau-nés a 3 jours de vie. Le bilan du dépistage néonatal 2013.

E-HOD - European Network and Registry for Homocystinurias and Methylation Defects

European Network and Registry for Homocystinurias and Methylation Defects. Information for adults, parents and carers. Link to registry and statistics. The host city of the 2016 Olympic Games is now the proposed venue for the 2nd International Patient-Expert Meeting for Homocystinuria. The Meeting is being scheduled. For September 4th, 2017 in Rio.

Orphan Europe

Big thinking for people with rare diseases. At the forefront of rare disease policy. Hyperammonaemia due to NAGS, IVA, MMA or PPA. Vitamin E deficiency in chronic cholestasis. Foods for Special Medical Purposes. Compliance - our guiding principles. Private section for Healthcare Professionals.

PHEarless in Texas

A list of PKU resources and the occasional commentary. Welcome to my pku blog. Volunteers with Mild Hyperphe or PKU Needed for Bone Mineral Density Study. Maternal PKU Group on Yahoo. The Texas PKU Medical Foods Law. PKU Culinary Conference - Denver, CO.

Taranis Produits pour maladies métaboliques

En savoir plus? Pause dessert saveur Fraise! Découvrez notre Pause dessert saveur fraise! Onctueuse et savoureuse, essayez là! Des recettes adaptées à chaque. Personne pour varier les plaisirs.

SWISS PKU Interessengemeinschaft für Menschen mit Phenylketonurie PKU

Sie sind herzlich dazu eingeladen! Wir freuen uns auf Sie! DAS SIND UNSERE ZIELE. Wissen rund um PKU vermitteln.

Home RC Annecy Rive Gauche

Soirée Théâtre avec la Troupe Les Escholiers. Philippe KARA-AGOP, Président-élu 2017-2018! Depuis sa création, il y a 111 ans, le .

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CONTACTS

veronique berthe

veronique berthe

15 rue marcel paul

roche la moliere, 42230

FR

Les Feux Follets

Veronique BERTHE

1043 rue de la Vacquerie

Moncheaux, 59283

FR

Guillaume Olonde

78bis avenue de Soissons

Chateau thierry, 02400

FR

PHENYLCETONURIE.ORG SERVER

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We diagnosed that phenylcetonurie.org is operating the Apache operating system.

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Les Feux Follets www.phenylcetonurie.org

DESCRIPTION

Qui sommes-nous ? En savoir plus Les Maladies représentées La phénylcétonurie est une déficience enzymatique rare qui touche en moyenne 1 nouveau-né sur 16.500 en France et 40 personnes

PARSED CONTENT

The website states the following, "Vous êtes un professionnel? Vos questions vos remarques." We viewed that the web site said " Partage de bonnes idées! Le mot de la Présidente." It also said " Congrès et interventions des professionnels. Le Congrès annuel des Feux Follets. La Marche des Maladies Rares. Le déficit en Ornithine Carbamyl Transférase."

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